Someone simply cannot imagine the level of horror, pain and dread that comes with a Chronic Cluster Headaches.
Never knowing when the next trip to hell will occur means never having a life…
I’M VERY FORTUNATE
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MY HEADACHES WENT AWAY
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MOST KIDS’ WON’T
Today, I’m a dad and business owner in my 50s, hoping to help other children avoid the shitstorm that was my life.
EXTREMELY RARE— Migraines, for example, impact roughly 12% of people. This means cluster headaches are more than 100 times more rare than migraines, making them one of the rarest—and most painful types of headache disorders.
Compared to migraines, Cluster Headaches affect less than 0.1% of the total population.
Cluster Headaches: [Definition] “characterized by cluster periods lasting from 7 days to 1 year, separated by pain-free remissions of at least 3 months.”
REFERENCE: Someone is more likely to:
…than to suffer from Cluster Headaches.
EXCEPTIONALLY RARE— While cluster headaches already affect less than 0.1% of the population, chronic cluster headaches are even more rare making chronic cluster headaches not only one of the most severe pain disorders, but also one of the rarest, even among those who already suffer from cluster headaches.
Compared to migraines, Cluster Headaches affect less than 0.01% of the total population.
Chronic Cluster Headache: [Definition] “Attacks occur for more than 1 year without remission.”
REFERENCE: Someone is more likely to:
…than to suffer from Chronic Cluster Headaches.
EXTRAORDINARILY SCARCE—While cluster headaches already affect less than 0.1% of the population, chronic cluster headaches in children are so much more extraordinary. This condition is estimated to affect fewer than 0.005% of all children, making it not only one of the most excruciating pain disorders, but also one of the rarest medical conditions in existence—even among those who already suffer from Cluster Headaches.
Compared to migraines, Chronic (daily) Cluster Headaches in children affect less than 0.004% of the total population. That means a child is 24,000x (times) more likely to experience a migraine than the relentless agony of Daily Chronic Cluster Headaches.
REFERENCE: Someone is more likely to:
…than to suffer from Chronic Cluster Headaches as a child.
Fact: This condition is so rare in youths, pediatric neurology and headache guidelines reference the adult diagnostic criteria when evaluating children and adolescents because there’s no data for kids.
Is experienced by less than 2% of the total population, globally.
Definition: Having 15 or more headaches per day per month, with at least 8 of those being migraine days, for 3 months or longer. [Source] These can be incredibly painful and in some cases the pain can be so severe that it prevents sufferers from leading any normal life at all.
A life considered typical or usual. This includes things like the ability to hold a steady job, maintain basic friendships or even having the ability to be involved a romantic relationship or marriage.
–Migraine ranks at a 5.4 on the Fischera Pain Scale.
This pain is pretty gnarly ranking between Fibromyalgia at a 5.2 (same as a broken bone) and a Slipped Disc at a 5.9 (same as a gunshot wound). Indeed, very, very painful especially considering less than 2% of people actually suffer from Chronic Migraines.
“Cluster headache (CH) is the most severe pain condition that can afflict humans.”
Source: National Institute for health:
https://pmc.ncbi.nlm.nih.gov/articles/PMC5901943/
The suicide rate for people who suffer with CH 30x – 40x higher in people who suffer with Cluster Headaches.
Source: The Headache Journal
https://thejournalofheadacheandpain.biomedcentral.com/articles/10.1186/s10194-021-01241-7
Cluster Headaches rank at 9.7 or greater on EVERY Pain Scale ever created.
There are 3,700 children (approx 0.005%) who suffer from Chronic Cluster Headaches EVERY DAY in the US.
BECAUSE EVERY SINGLE CHILD DESERVES
~A Child’s Life ~
A life filled with Hope and Love and Peace and Comfort
FULL STOP. NO EXCEPTIONS.
To help send as many children for treatment as possible.
TRUTH: As you read this sentence—There’s are hundreds of children in this very moment— The same fake smile, empty heart, filled with rage, hate, hurt and the going through the same unimaginable and inconceivable pain.
A Cluster Headache is shredding through their brain, ripping and tearing their heart and hope into a trillion pieces; over and over and over.
I only suffered from a mere 2 – 3 headaches a day.
Some children suffer up to SIXTEEN Cluster Headaches every single day.
Although there have been many trials in the search for a cure for Chronic Cluster Headaches over the years, we finally have solid, double-blind tested exciting results!
Recent studies have explored the potential of psychedelics such as psilocybin and LSD for treating cluster headaches. One comprehensive review published in SAGE Journals discusses clinical and observational evidence for the effectiveness of psilocybin and LSD in preventing cluster headache attacks. Read the full article here.
Additionally, a Phase 2 trial known as the LICIT study is currently investigating the use of low-dose LSD as a preventive treatment for chronic cluster headaches. See the study details on ClinicalTrials.gov.
Many parents might cringe when they read that. The “cringe” will fade the very second they let the sigma go.
How any parent who has seen their child go through something like this would EVER deprive them from this potentially life-saving treatment.
Cluster Headaches | The Most Painful Condition known to Modern Medicine.
Sources: Brain Search, Wikipedia, The Migraine Trust.org and The very long here list goes on…
100% of donations go to children suffering with Chronic Cluster Headaches.
Why???
To prevented what happened to me…
Non-Profit organizations are usually a scam to some degree or else they wouldn’t need to hide behind a 501 c3 and use the government for their protection. In my vast experience 501 non-profits are only to avoid taxes while enriching those who run them.
We’ve got nothing to hide, so we will be paying ALL TAXES and keeping 100% “Open Books” on all donations on this website for the public to see how every dime is spent.
Allowing outside entities to dictate the course of my treatment was the biggest mistake of my life…
And that’s saying a lot.
More than all the trouble I got into, bad decisions made and pain I caused over the years, the worst decision I EVER made was allowing those greedy little blood-sucking leaches (medical “professionals”, insurance companies, pharmaceutical companies and governmental agencies) to dictate the course of my treatment. They only ever threw prescription after prescription at the problem and drained our bank accounts.
Fuck em! Want something done right? Here I am… Assholes.
THE GENERAL OVERVIEW BREAKS DOWN LIKE THIS
It’s taken me over 40 years to get my shit together after being diagnosed with cluster headaches at eight years old.
Half of my life was a train wreck of drugs, abuse, pain and mental fuckery with a WHOLE LOT OF adventures along the way.
Now, 40 years later, as a dad, and successful business owner, I’m on a mission to try and help other children who suffer from this horrible condition.
As I was also sexual abused (ages 3 – 16) at the same time as dealing with the Cluster Headaches and my life went in a direction it probably wouldn’t have otherwise gone; if I had only been able to manage the pain; even just a little.
Be that as it may, I have acquired quite a life story and I hope to share it in an effort to raise awareness and money to help other children who suffer from Cluster Headaches like I did.
If you have questions, just ask. I’m an “open book”; literally.
Just don’t be dick or we’ll block you from this website for life.
I AM NOT TOUGH. I AM NOT A BADASS. I AM NOT STRONG. I HAD NO CHOICE.
I AM WEAK AND BROKEN AND CHALLENGE NOBODY TO ANYTHING.
This is the wrong site for that macho shit; take it elsewhere.
We are ONLY LOVE. ♥
We need as much support as possible!
You’ll hear directly from the children and their families about how your support has helped them!
Also included in every Newsletter will be monthly discounts with our Partner Companies,
You’ll hear directly from the children and their families about how your support has helped them!
Meet and read about other supporters and like-minded people who are making a huge difference in the world of Helping Children.
Also included in each Newsletter is our Monthly Financial Report, partnerships and more!
Physicians and medical experts will talk about new and exiting research in the field of Cluster Headaches and neuroscience.
YOU are our advertising budget and we rely heavily on kind supports like you to continue working with kids and providing the support they desperately need.
Every Share, Like and even a simple mention in a conversation helps us get one step closer to helping kids in need!
SO DON’T BE SHY!!!
Any exposure, even just a simple share on social media helps!
We cannot help every child. We are a small company with a very finite mission and limited resources.
Our Mission Targets are children ages 3 – 14 years old, with only the very worst Cluster Headaches.
We take donations in any form as long as it helps!
THIS INCLUDES:
SO DON’T BE SHY!!!
Any exposure, even just a simple share on social media helps!
